Page 31 - Delaware Medical Journal - May/June 2019

CASE REPORT
REFERENCES
1. CF Foundation (2016) What is cystic fibrosis? CF Foundation.
2. Miller SR, Schwartz RH (1992) Attitudes toward genetic testing of Amish, Mennonite, and Hutterite families with CF. Am J Public Health 82: 236– 242.
3. Brensinger JD, Laxova R (1995) The Amish: perceptions of genetic disorders and services. J Genet Couns 4: 27-47.
4. Weyer SM, Hustey VR, Rathbun L, Armstrong VL, Anna SR, et al. (2003) A look into the Amish culture: what should we learn?
J Transcult Nurs 14: 139-145.
5. Katz ML, Ferketich AK, Paskett ED, Bloomfield CD (2013) Health literacy among the Amish: measuring a complex concept among a unique population. J Community Health 38: 753-758.
6. Zhao J, Schloss PD, Kalikin LM, Carmody LA, Foster BK, et al. (2012) Decade-long bacterial community dynamics in cystic fibrosis airways. Proc Natl Acad Sci USA 109: 5809-5814.
7. Filkins LM, O’Toole GA (2015) Cystic fibrosis lung infections: polymicrobial, complex, and hard to treat. PLoS Pathog 11: e1005258.
8. Simon RH (2019) Cystic fibrosis: Overview of the treatment of lung disease. UpToDate, Inc.
9. CF Foundation (2016) Highlights of the 2014 patient registry. CF Foundation.
10. Mowat A (2017) Why does cystic fibrosis display the prevalence and distribution observed in human populations? Curr Pediatr Res 21: 164-171.
11. Welsh MJ, Ramsey BW, Accurso FJ, Cutting GR (2001) 201: Cystic fibrosis. The online metabolic and molecular bases of inherited disease. McGraw Hill: 512-588.
12. Amish Studies (2018) Amish population profile, 2017. Young Center for Anabaptist and Pietist Studies, Elizabethtown, PA.
13. Henderson JF, Anbar RD (2009) Care for Amish and Mennonite children with cystic fibrosis: a case series. BMC Pediatr 9: 4.
14. Siu G (2006) Amish, Mennonite, and Hutterite genetic disorder database. Biochemical Genetics Laboratory, London, Ontario.
15. Cunningham JC, Taussig LM (2013) An introduction to cystic fibrosis for patients and their families. CF Foundation.
16. Hairston KG, Ducharme JL, Treuth MS, Hsueh WC, Jastreboff AM, et al. (2013)
Comparison of BMI and physical activity between old order Amish children and Non- Amish children. Diabetes Care 36: 873-878.
17. Yoder JS, Dworkin MS (2006) Vaccination usage among an Old-Order Amish community in Illinois. Pediatr Infect Dis J 25: 1182-1183.
18. Wesner E (2011) Do Amish have genetic disorders? Amish America.
19. Caballero J, Campo R, Tato M, Pedrosa
EG, Cobo M, et al. (2014) Microbiological diagnostic procedures for respiratory cystic fibrosis samples in Spain: towards standard of care practices. BMC Microbiol 14: 335.
20. Voss C, Dean PH, Gardner RF, Duncombe SL, Harris KC (2017) Validity and reliability of the physical activity questionnaire for children (PAQ-C) and adolescents (PAQ-A) in individuals with congenital heart disease. PLoS One 12: e0175806.
21. Mogayzel PJ, Naureckas ET, Robinson
KA, Brady C, Guill M, et al. (2014) Cystic Fibrosis Foundation pulmonary guideline: Pharmacologic approaches to prevention and eradication of initial pseudomonas aeruginosa infection. AnnalsATS 11: 1640.
stfrancishealthcare.org
Outstanding patient care means meeting your surgeon, not any surgeon.
Not every surgical center can promise that the surgeon you meet with is the surgeon who actually performs your surgery. You might meet with an intake physician or surgeon who won’t even be present during your procedure. At Saint Francis, we can assure you that the surgeon you meet will be the same surgeon who performs your procedure. Along with every other experienced and compassionate member
of our skilled surgical team. Caring for you through life. Saint Francis Hospital Just off Pennsylvania Ave in Wilmington