Page 28 - Delaware Medical Journal - May/June 2019
P. 28
controlled study was conducted at a
Children’s Hospital. The clinic had
a total of 40 CF patients and 25%
of patients were Amish. This study CF. Consent forms detailing the study were signed before study enrollment by the patient. Participants were excluded from the study if they failed to give their informed approval. This comparative Amish population was carried out and compared to the non-Amish community.
The primary outcomes investigated included homozygous for delta F508 mutation, nutrition, BMI, FEV1, FEF 25-75, airway microbial organisms, and changes in antibiotic treatments in Amish compared to the non-Amish group. Optimal antibiotic therapy was determined as antibiotic targeted to the offending pathogen and included
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de-escalation or discontinuation of unnecessary antimicrobial directed at other organisms. A contaminated culture was suspected if only one of the cultures was positive for commonly recognized contaminants such as “coagulase-negative staphylococci.” The secondary outcome was to understand the impact of lifestyle factors in the Amish population with CF utilizing electricity, and physical activity results compared to the non-Amish group.
Data included age, homozygous for
delta F508, height, weight, BMI, weight for length, FEV1, FEF 25-75, microbial colonization models, and antibiotic exposure.16 Additional data obtained included: vaccine history, medications, treatment, insurance programs, assistance programs, power use, and well water.17,18 Trained interviewers collected data every 19
A questionnaire related to non-port CF
data was utilized to obtain supplementary
programs and electricity, and level of using Physical Activity Questionnaire (PAQ).20
Statistical analysis
Chi-square or Fisher’s exact test was applied for an inferential statistic on categorical data, while Student’s t-test applied for continuous data. Wilcoxon test was applied to episodes of infections due to non-normal distribution.
Results
This retrospective analysis included
data from 25 CF patients: Amish (n=9) and non-Amish (n=16). There was no statistical difference in age and sex between the groups (Table 1). The
Amish population with CF were 100% homozygous for delta F508, while 40% of
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